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More on Cerebral Palsy
The Early Intervention Program
Early childhood is a time of intense learning in the life of a human being. Unfortunately this period extends only for a few years, after which the ability to learn life-skills reduces considerably. It is therefore very important to identify a child with CP as soon as possible and start early therapeutic intervention. Besides, a developing brain even if it is damaged, is able to readjust and adapt with proper training and intervention.
This program begins at an early stage with the diagnosis that the child is affected with CP. An initial assessment provides valuable information about the extent and severity of the condition. At this stage the parents and family of the CP child require proper counseling, support and education about the condition of their child and his/her future.
Among those involved in this program are parents and family of the child, Medical professionals, Physio-therapist, Occupational-therapist, Speech-therapist, Special Educators and Social workers.
The Schooler Program
Cerebral Palsy is a severely disabling condition. Problems of access and mobility, poor hand function, disability in speech and language make it impossible for the child to be in normal school. Besides education, these children will need therapy, use of special aids for mobility, special seating, training in activities of daily living, and speech. In short a special environment, which cannot be provided in a normal school. So they need to have a special school with specially qualified teachers and therapists for their rehabilitation and education. However, it will be the aim of this program to try and put the more able child back into mainstream education. This program also provides special vocational training depending on the abilities of the child so that he will be able to be gainfully employed later in life, either in open employment or in a sheltered workshop. The social workers attached to the program will source for suitable jobs upon the guidance of the therapists. Children in the school going age of 4 years to 16 years will be included in this program.
This program requires the help of Physiotherapists. Occupational therapists, Speech therapists, special educators, Social workers and vocational trainers, non-professional staff like drivers, aides, office assistants and ayas.
Sheltered Workshop
After the schooling age, the adolescent who is capable of being employed will be encouraged to do so. The Social worker will source for an appropriate job in sympathetic organizations, based on the suggestions of the therapists regarding the abilities of the individual. Studies have shown that only a very small population (about 4%) of affected individuals are capable of open employment. However with specialized training and highly modified environment like a sheltered workshop, about 20-25% of them are able to be gainfully employed. Jobs like packing materials into their respective boxes, sorting etc are usually carried out in such workshops. Sympathetic companies and organizations supply the raw material to the workshops and the employees are paid by piecework. Besides providing a minimal income, this helps to keep the person occupied, in a social group and boosts his/her self-esteem.
The Day- Care Program Go to Top
It is a sad but unfortunate fact that about 70% of all affected persons will eventually become homebound and totally dependent on parents and caregivers. While therapy and other rehabilitation programs help reduce the effects of the disability and it is not a cure in itself. The adult individual can become very difficult for an aging parent to handle. If both parents are working, it may become difficult for them to leave the person unsupervised at home. Without maintenance-therapy, the person may slowly lose all the skills he/she took so long to learn, while in turn will make him more dependent.
The day-care program will consist of a place where parents or care-givers will be able to send their wards during the day, where they will be cared by trained staff, who will also provide the basic therapy required for the maintenance of their already learnt skills. This program will include therapists (for supervision only), therapy aides and caretakers.
The society being in its infant stage, is unable to accommodate the two above-mentioned programs (the sheltered workshop and the day-care program). However, for these issues are being addressed.
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